5 days to go until we leave for National Jewish Health’s Pediatric Day Program in Denver, CO and writing this just to have a way to keep all of you, who have been so instrumental and supportive in us going informed. I hope this is a good platform for doing so. I’d like to keep you in the loop while we are there, and it’s a lot easier to do this on the iPad.I can add pictures. And we all love pictures.
The last 6 weeks have been the toughest of our lives with the itching, sleepless nights and lack of solutions. We’ve dealt with this for 4 years but it seems somehow intensified recently. The avoidance of food allergens are nothing in comparison to eczema.
We’ve tried every lotion, cream, ointment and snake oil. Zoey still itches despite our best efforts to contain her in a bubble.
She’s four and has lots of energy like any other kid her age and we have to constantly limit her.
No hands on the floor without gloves. Don’t let your skin touch the grass. Don’t even think of going near that cute little kitten, or puppy. Don’t touch the door. Touch nothing in the store.
Don’t touch my hands- I haven’t washed them. Don’t touch that gift, library book, pen, toy that’s been outside, table top until I’ve washed it. Don’t nap on the couch without a newly washed sheet. I’m hiding your stuffed animals. I’m washing and drying them. I’m freezing them.
It could be the grass, pollen, mold, dust, weeds, rabbit hair, old cat dander, residue from someone’s shoe, garlic, onion, cross contamination, heat, sugar, acidity, cold,humidity, known or unknown food allergen that’s making her itch.
Let’s wash it, clean it, apply steroids, apply cortisone, give benadryl, manuka honey, Zyrtec, slap some coconut oil, dose Claritin, probiotics, wrap it, throw in some salt and vinegar. And why the loose tooth? WHY the loose tooth?
These are all words that have passed our lips in the last week and she still itches. Zoey made it through a total 3 hours of daycare this week. We tried each morning before she started itching so furiously that the open wounds would fester if we let it go longer.
Have you ever seen that painting The Death of Marat? This image comes to mind lately during the many baths we give Zoey, and I wonder if he had eczema. (He didn’t die of his skin condition-that’s a whole separate story. He just spent a lot of time in the bath because it was the only thing that relieved his skin symptoms. He did everything in the bath water,hence the parchment)